LJ Idol: "Not My First Rodeo"
Nov. 16th, 2018 05:08 pm
Shazza is sprawled on the sofa, chewing her faithful gum, and flicking endlessly through television channels, doing her best to channel her inner 90s teen, while I cautiously stand next to the plug so I don’t disconnect my phone from where it’s charging.
“Mate, what even is this,” she says, squinting sideways at an image corrupted by static, “You need to remember your Netflix password asap, and stop doing damage to yourself to get out of gym.”
“Fuck off, Shaz. S’low blood pressure.”
It’s after 7:30 on a Thursday night, I’m cycling through all my various passwords on the Netflix app on my phone, trying to remember what seemed like a good password at the time. Obviously too good, as I have now forgotten it entirely.
I can hear Mum in the other room, chatting on the phone – probably my Auntie Liz – and the half-second words of each flick-through on the TV, and I stumble backwards, catch myself at a weird angle with a well-placed foot.
I insert another password, pleasework, then everything goes muffled.
I look up, but darkness is creeping through the edges of my vision, tunnelling in.
“Shaz?”
“What?”
I don’t know what to do here, but I’m already wobbling again.
“I’m going to sit down now. I can’t hear anything anymore. I can’t – I can’t see.”
“Mate-“
I use the wall on one side to steady my slide down to the floor. I can feel Shazza walking up to me, then desperate steps back and forth, and more.
I still can’t hear or see anything, darkness, eerie quiet.
20 minutes later, I am in my mother’s car on the way to hospital while Sharon holds my hand.
The vibration of the car is very slowly turning into a rumble I can hear.
Mum is on hands-free with Dad, letting him know we’ll be in A&E.
40 minutes later, we’re waiting to be seen.
I’m not bleeding, so I’m a little further in the queue than Mum would like, but I’m ok.
I’m starting to see again.
It’s blurry, but it’s there.
Shazza’s still holding my hand. She looks terrified.
Two hours later, I see a frazzled-looking, but calm-exuding doctor, who, after a couple of easy cognitive tests, explains that I fainted without losing consciousness, that my brain decided that was the right thing to do in the moment.
“So I rebooted because I stumbled?”
“Basically. Your ankle is recovering from a sprain. Half your brain told you to lose consciousness because of the pain, and the other half said, ‘No. We don’t do that.’ This was the compromise.”
Excellent.
“So I’m ok.”
He nods, “It’s not unusual, and there are no lasting effects.”
“Will it happen again?”
“That’s unlikely, if this is the first time you’ve experienced it. ”
Sixteen days later, it happens again.
A month and a half later, it’s happened a total of six times, and I am back in A&E. This time it’s lasted an hour, and I need to hang onto my mum when she moves in order to get anywhere. No worse fate for a teen.
It’s a different doctor, and she sends me up for an MRI immediately.
I’m so tired that I could fall asleep the minute I lie down, but even with headphones and the top 40 being pumped directly into my eardrums, the machine is loud.
Presyncope – fainting without losing consciousness – has a number of causes, can be a symptom of a number of things.
“We’ll figure it out,” says the radiology nurse, “We always do.”
I get a specialist assigned to me, whose first free appointment is in another three months.
My parents are furious that it will take that long.
I’m just resigned.
My blood pressure drops dangerously low.
Mum starts putting sugar in my tea, and Dad keeps bringing me awful-tasting sports drinks.
Four months in. I’m officially classed as “chronic” by the specialist, but there’s no condition or disease after that.
All that means is I’ve had whatever this is for 3 months or more.
I think they need to redefine their definition.
“Alright,” says the doctor , tucking her hair into a ponytail, “Buck up, this won’t be quick, but it won’t be too bad.”
“I feel like if I buck that will be bad,” I joke, eyeing the largest needle I have ever seen.
“It’ll be fine. You got the anaesthetic, you’ve got your mother, just try to relax and it’ll be over in about half an hour.”
She makes me curl up in the foetal position, on one side, with my head on two pillows.
It’s unpleasant, but not actively painful. She doesn’t nick bone, she doesn’t hit anything she shouldn’t.
I spend the first ten minutes trying not to breathe in too much and move anything I shouldn’t, until she tells me to relax, and to trust her.
Every so often, the doctor will move something, or change hands. My mother smiles and chats aimlessly at me. Work, the upcoming weekend, the Aunties.
I drift, a little dizzy, dozing in that area between consciousness and sleep. I feel drained, even though I haven’t done anything to feel that way. At Ieast I know the tired bit is just me and not the presyncope.
I'm starting to be able to tell.
At the forty five minute mark, my mum asks, gently, “So sorry. It’s been more than half an hour, is everything ok?”
“It’s fine, I just want to try and reduce the pressure a bit. Cerebrospinal fluid should be lower than hers is. I just want to bring it down a bit further.”
An hour in, my back and hips are starting to ache due to the position I’m in, and I’m exhausted. I want to go home.
She reluctantly pulls the needle out, unsatisfied with the pressure.
She reiterates what the pamphlet on lumbar punctures said, that I should be ok, but headaches are a normal after-effect, take paracetamol, drink lots of fluids.
I go home feeling ok, with an ache in my back, but nothing else. I sit in front of the television and drink water and watch NCIS reruns until my eyes burn.
Nobody really described the intensity of this “headache”.
I spend the whole weekend, all 48 hours, in a dark room with an icepack, desperately trying to remember why I shouldn’t be taking more painkillers.
I lose track of time.
Mum answers texts for me – I’m ill, try again Monday.
Shaz comes round on the Monday night. That’s nice, anyway.
I show her the bruise, a thin purple line running the length of my spinal column, spreading outwards at the puncture site like a river and lake. Or a trail to an airplane crash.
“Cool. Gross, but cool.”
Seven months and twenty three days, back with the specialist.
It’s some sort of dysautonomia. Not narrowed down very far, since I reached that conclusion on my own with Wikipedia.
Still, better than nothing.
He tells me to go to A&E immediately if I have difficulties swallowing.
I tell him I could have figured that out on my own, thanks.
Mum doesn’t say anything.
“Tell them you’re my patient,” he says, reading the room, “You’ll be seen sooner and they’ll let me know you’re there.”
As we find out, it works.
Thirteen months and six days later, I find myself in the same foetal position, for a second lumbar puncture, to double check, and to lower my CSF pressure.
The doctor recognises me, grins as she sits down.
“Back on the horse, eh?”
I joke again, taking a last swig from my Lucozade bottle, “Not how I like to be referred to, but ok.”
The nurse chuckles. His smile is kind, he’s new on this floor.
I smile back.
“She’s really good at this, you’ll be fine.”
“This isn’t my first rodeo,” and I know now it won’t be the last, “Let’s get it over with.”
While I lie there on my side, I stop counting the days.
I decide it’s not worth doing the individual count, it won’t help.
Depression, anxiety. These are often comorbid with chronic diseases.
The school finds me a counsellor. Dad finds me a psychotherapist.
I talk to both.
I think it helps.
Shaz is proud of me, in her own way, though sad she’s not enough.
“I get it, you know, that I don’t get what it’s like. Still, I’m here.”
I need the reminder, sometimes.
I end up back in hospital with tremors. Always nice to meet a new symptom.
While I’m there, I lose vision and hearing again. Brian, the nurse, is my main daytime contact for a week.
Mum and Dad still have to work.
He tells me about his parent’s farm, and his original dream of being a jockey, but he couldn’t stand the cruelty to horses, or anyone or anything in pain.
He’s built like a pro-wrestler, but he’s a softie.
When I finally get diagnosed, it’s just a flood of relief. It’s been twenty six months since that initial bout of presyncope, and all I wanted to know was what.
Mum’s more of a how do we fix this, and Dad’s gone with how to fix the house around this.
Knowing what is enough for now. It’s not just me.
My blood pressure crashes again, and I’m too weak and shaky to do much for a while.
The nurses welcome me back with a teddy.
Shazza places the teddy onto the bedside table, then elbows me into sharing my bed, sprawls out next to me and on top of me, remote control in hand, and flicks through the television channels, looking for something to watch until Brian bustles through, makes sure I have my IV in properly despite the jostling.
Shaz raises an eyebrow at me, “You didn’t tell me you stayed in hospital so long for the view.”
Brian smiles at her, flirts back for a minute, leaves to get on with his duties.
“There’s a joke about riding a cowboy in there somewhere,” I tell Shaz, “Or lassos and ropes. You always did like men with broad shoulders.”
She laughs, “Text me when you think of them, yeah?”
We go back to flicking through the channels.
“Mate,” she says, wrinkling her nose at the hospital’s entertainment offerings, “Have you got your laptop? Did you ever remember your Netflix password?”
Fiction! Based on vaguely real events, but very much fiction.